Change of plans

So a few things have happened since I last posted. Bridger had an echo on Friday, showing that his pulmonary pressures are still high. He had an okay weekend, other than he was vomiting alot (which we were worried that was a sign of poor heart function). Yesterday was a rough day for me. This hospital stay really caught us off guard this time, for the first time, Bridger got to be a real baby at home. He was sleeping without discomfort, eating without discomfort, playing without becoming easily exhausted, basically doing all of the things that he deserves to do. So when he turned blue and ended up in heart failure again it knocked me for a loop. So I had some discussions with the doctors yesterday, and again today about the long term outcomes and plans for Bridger. His case will be discussed in cath conference on Wednesday because there are so many different opinions regarding his health, so this way all of our physicians can be together in one room to give their input. Also on Wednesday, I will be meeting with the heart failure team and the heart transplant team, and they will evaluate Bridger for possible treatments. So the plan for the next two days is to maximize his medications in hopes to help his pulmonary hypertension.