Saturday, April 25, 2009

This is the Maile family. I told you about them a few days ago, when their beautiful daughter, Eliana, passed away. Today was her funeral, Danny and I went to the viewing. Words cannot express the feelings we had. Sweet Eliana looked like a porcelain doll, she was so tiny and perfect. Elizabeth and Eli, our hearts go out to you. The two of you are amazing parents for putting your daughter first in a very trying situation. Just remember, Eliana will always be with you. As for Bridger today, we are still holding. His liver is struggling a little, but it may be due to the infection or his antibiotics, we are not sure yet. He had an echo yesterday looking to make sure that the infections have not started on his valve, and so far so good on that front. He is getting another blood transfusion right now which usually helps him perk up, so here's hoping. Despite it all, my sweet little man still smiles at me when I kiss him and even gives me a giggle when I act silly for him (maybe a little for me too!) We hope to get Bridger a spot in the operating room on Monday to get a new central line placed for his medicines to run through. I thank all of you who keep an eye on our beautiful boy, you'll never know what it means to us to have so many keeping him in their thoughts and prayers.

2 comments:

Thekrogwoman said...

Keep up the positive attitude! You guys and Bridger have been through so much. My heart aches for you. All I want is for you to be home with your happy, HEALTHY little boy!! We'll keep praying! I wish I could be there everyday for you, but please know I am always thinking about you guys!

Leisa said...

It makes me smile to know that you are acting "silly". Bridger needs that in his too serious little world. I'm happy that he smiles and giggles and that you enjoy each other, hospital or no hospital.

As for the Maile family, I feel for them. Funerals are hard. I know thier daughter is in a better place now and not suffering. Now she can look down on them and take care of her family.

Tell Bridger we love him. I am looking forward to the first family sunday dinner that he'll be at.

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