Not a whole lot

A few things to discuss today. First, yesterday Bridger tried an inhaled medication for his pulmonary hypertension, but it did not work. So he will just stay on his current medication regimen and we will see how things go. Right now there is not much else that can be done for him, so our plan is to maximize his current medications and take him home on that IV medication that helps his heart (milrinone). They don't usually let patients leave the ICU on this, but they are letting us use it at home because Danny and I feel that it is important for Bridger to know something other than the hospital for his life. In his 7 1/2 months he has lived here for 5 months. So since they can't do much more here right now, they will send us home as is, if all goes well. We will be coming up for weekly echos and blood draws and hopefully that will be frequent enough for us to avoid another ambulance ride. In a couple of months, Bridger will have another cardiac cath to see if his lung pressures have decreased and maybe open the possibility of being a heart transplant candidate. Next on the list, remember a few posts ago I asked for 1000 paper cranes to help our wish for Bridger's improved health to come true. Well my sister-in-law, Maura, has started a blog to follow the progress of our collection of cranes, it is papercranesforbridger.blogspot.com so if any of you want to help or just keep up to date on our quest to make our wish come true you can check it out. I think that is all I have for today.