Okay, this is going to be a big one! I have been lazy on keeping up with the blog for the last month, so here we go. Starting with the newest news. They tried Bridger on the Flolan again yesterday, beginning with a smaller dosage and working our way up. His x-rays remained unchanged through the night, and he even seemed a little more comfortable. This morning they are increasing the dose again and will do an echo to see if the flolan has improved the pressures in his heart and lungs....here's hoping. Our sweet boy has not told us that he is done playing with us, so we are continuing to explore all possible options for him, one of which includes a heart-lung transplant. If the flolan and other medicines do not help and we choose this option, Bridger and I would be moving to a hospital that performs this surgery(probably Stanford Children's-San Francisco) to wait for a transplant. We have not done the work-up to be listed, but it is an option that we are checking into. As for Bridger he is still his sweet self, smiling with his CPAP on, laughing and playing during his assessments from his doctors and nurses. He is still growing, he sits up without support, he rolls all the way over and grabs everything in his sight. He is very strong and continues to amaze me everyday. Thank you for all of your support, thoughts and prayers. We hope you enjoy all of our new pictures.
Two teeth have already come through on the bottom, and two more are working their way out.






7 comments:
He is so cute. Good luck with your decisions in finding what is best for your family and Bridger's care.
Hugs & Prayers,
Christina from IHH
Jacob's Momma
Ah! Love all the new pictures. Glad to hear Bridger is developing well, despite all of his challenges. Soon he'll be crawling all over!!
I loved that post! Cute pictures, cute stories, cute captions, cute family. Thanks for the update.
P.S. How long do you think you'd have to wait in San Fransisco for the heart-lung transplant?
Adorable! The pictures of your family are priceless. I can't imagine the pressure of having to think about such decisions, let alone actually making them. I know you and Danny will make whatever decision you feel is best for Bridger. Please know that we are all here for you and will stand by all that you decide. We love you all! Enjoy your sweet babe!
Dear Danny and Staci,
Thank you for the beautiful pictures. What a good looking family. To look at Bridger he looks so healthy and happy. You can tell he loves his mom and dad. I am so thankful that the drs. come up with new options rather than giving up. I love you.
Love, grandma
He is one cute boy! I love all the pictures! I hope the new medicine helps. I'm sorry you guys just can't catch a break. You keep playing with that sweet boy.
He is such a sweet little man. I love love the pictures. He just melts my heart. We will pray super hard that this new med helps with the pressures. Hang in there!!
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