Saturday, December 12, 2009

LET'S MAKE SOME NOISE!!!!!

While blog-stalking tonight, I came across a post explaining a new bill to be presented to our legislation. The bill is known as the Congenital Heart Futures Act. The bill addresses the issue of adults with CHD's and the shocking statistics that only 10% receive the life-long care that they need to have a longer, healthier quality of life. The bill supports research and education on congential heart diseases to promote the chances of the medical industry discovering new and better ways to help those born with CHD's later on their lives.

The bill hasn't received enough attention to be recognized as well as we need it to. But we can help our Senators understand the importance of this bill and perhaps help improve the lives of all those little boys and girls born with CHD's that spent months in hospitals undergoing surgeries to help them continue forward. We need them to know that even when they are grown they will still be cared for and taken care of.

If you want to voice your opinion there is an email template (found on this page under "action is simple") that you can fill in the blanks with your name, your personal relationship to this issue and where you are from. Then you send it to your local senators and house representatives and they will start to see how life-changing this bill is.

Email Bob Bennett: here
Email Orrin Hatch: here

The full text of the bill can be read here.

It is time to make a STINK about this terrible disease!

3 comments:

Lisa Marie Trent said...

Thanks for passing it on Staci! And truly, I want to flap your dogs ears around. So dang cute.

Happy Holidays..

~L

g-ma-vicki said...

We are sending letters to Arizona's senators as well. I saw that Paul Cardall had a personal meeting with Senator Hatch over Thanksgiving break! And Senator Hatch carries so much weight as a Senator respected by both Republicans and Democrats, etc.
Couldnt be there to help with the run but I called a friend who is gathering friends from Wells Fargo to join her. Best Wishes and a Blessed Christmas.
Owen's Gramma Vicki

Becca said...

Hi Staci, I will send my own and pass it on! Thanks for all that you do for CHD. I need to get a picture to you for the faces of CHD. Where should I send it to? My e-mail is rebeccacason1@yahoo.com. Have a Wonderful Christmas.

Becca-Ellie's mom

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