WE ARE HOME AGAIN! HOPEFULLY FOR LONGER THIS TIME.

Bridger was discharged from the hospital yesterday afternoon. We got home just before 4pm and started to settle in. We are all hoping that he doesn't have to go back to Primary's for more than his checkups and blood draws for quite some time. He still can't be around crowds or children for quite a while due to the risk of him catching something, so again we will be laying low for a while. I will keep posting on Bridger's progress while we are home. Thank you for all of your thoughts and prayers. We love you!

a couple days ago

The Echo

The Echo that Bridger had yesterday had better results than last week. Our cardiologist reviewed all of Bridger's echos & didn't think that last weeks was that different, it just happened to be the timing of his heart contractions that made the heart function look worse than it is. That's good to hear. On the right side of his heart there are increased pressures, whether this is from all of the work it had been doing or the fact that the other issues are settling & this one is more noticeable now we don't know, but our doctor will keep an eye on it for now.

My SWEET boy!

Bridger has decided that he likes this whole eating thing. It is strange having to adjust to a hungry cry again, I never really thought that he would ever take a bottle again. But now he loves it, he just doesn't always have the strength for it after months of not eating, though he sure is building it up. No changes really today, we are just hanging out waiting to see if this new medicine can help his heart and he will have another echo on Monday, so I will let you know.

The Echo

Bridger had his echo done yesterday, which said that his heart function went from 59% down to 17%- we were not happy about this. However, in speaking with the cardiologist and the intesivest, they agree that yes his heart function is decreased, but maybe not as much as the numbers are saying. So they increased one of Bridger's heart medications and started another heart med and we will give it a few days and then maybe re-echo at the begining of next week. So not exactly what we want to hear, but hopefully a little better than the numbers show.

No news is good news

Not a whole lot of changes right now. The medical team is just trying to fine tune all of Bridger's medications. Sometime today he will have another echo to see the function of his heart with the new valve & his pacemaker. He has started to drink from a bottle again! It has been nearly four months since he has taken anything by mouth, so this is pretty exciting for us. Today he even got to try a little formula (1/4 formula & 3/4 pedialyte- so that he isn't shcked by the flavor) and he drank an entire ounce ( that is alot after months of eating nothing). So we have some things to continue working on. His rehab therapies started yesterday as well, which has been keeping us busy. Hopefully we are working our way out of here.