Bridger is standing on the floor and holding onto the chair with physical therapy.
Today we will have a lesson in biology. Bridger's
PRA levels are back. There are two classes, class I and class II. If the class I is greater than 10%, they will not list him for transplant. Bridger's class I is 0%, so we are home free there. His class II is 15%, which could be worse, and it is not a deal-breaker for transplant. So now they will further analyze his class II
PRAs to see exactly what they are, and for now we continue on with the evaluation. On Monday he will be schedules to have a chest CT scan to look at all of his vessels and he needs a developmental
evaluation. We are hopefully moving to the progressive care unit today, where Bridger will not have to share his bed with me and we will have a little more room to walk around. As for our pictures above, Bridger has been working with physical and occupational therapy the last couple of days. He knows that they are new and is trying to get away with fussing at them so they will leave, he has been with his old PT and OT for so long, they knew how far to push him without really making him angry, but this team has to start from scratch. Bridger is sure giving them a run for their money. When I hear more on the
PRAs I will post, but for now we are still a go on the evaluation.
Bridger is standing on the floor and holding onto the chair with physical therapy.
Today we will have a lesson in biology. Bridger's PRA levels are back. There are two classes, class I and class II. If the class I is greater than 10%, they will not list him for transplant. Bridger's class I is 0%, so we are home free there. His class II is 15%, which could be worse, and it is not a deal-breaker for transplant. So now they will further analyze his class II PRAs to see exactly what they are, and for now we continue on with the evaluation. On Monday he will be schedules to have a chest CT scan to look at all of his vessels and he needs a developmental evaluation. We are hopefully moving to the progressive care unit today, where Bridger will not have to share his bed with me and we will have a little more room to walk around. As for our pictures above, Bridger has been working with physical and occupational therapy the last couple of days. He knows that they are new and is trying to get away with fussing at them so they will leave, he has been with his old PT and OT for so long, they knew how far to push him without really making him angry, but this team has to start from scratch. Bridger is sure giving them a run for their money. When I hear more on the PRAs I will post, but for now we are still a go on the evaluation.
7 comments:
Wonderful news! Yeah!!! He looks fabulous! I can't believe how much hair he has now. When you get into his new room will you have a phone? Sure miss you!
So far so good. Bridger looks so great in the pictures. It is hard to believe how sick his little body really is. I hope and pray things continue in the right direction.
I'm sad that you are so far away, but if that is what is best for Bridger, I guess I will survive : )
Thanks for the updates!
I am THRILLED to hear his PRA numbers!! Just a comparison.. Owen's class I are 89% and class II are 98%. YUCK. I continue to pray for these tiny miracles so Bridger will have the opportunity to live a long, wonderful life!!
Hello Staci,
It is great to hear that Bridger's PRA levels are stable! He is such a handsome baby!
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That is amazing. I bet you had a huge sigh of relief. This little man is going to climb mountains!! Lots of prayers and love!
Let's keep moving forward! Go Bridger!
Great pictures! He looks so good. Good news on the class I levels. Hope everything else can fall into place so I can SEE him standing on the floor holding onto a chair. We love you!
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