Okay, let's get our game faces on!

Sorry, I had every intention of posting yesterday, but as you know things come up. Bridger was extubated on Saturday and did much better this time. He was extubated to high-flow oxygen this time instead of CPAP, so he was less angry which always helps. He has stayed extubated so far...he didn't really sleep on Saturday because he was so happy to not have the breathing tube in. We also did not sleep Saturday night, Bridger was very restless and uncomfortable, I was concerned that his heart was struggling again (lack of sleep is usually his first sign). Sunday morning, we talked to the doctors who were also concerned and although it is usually heart or lung issues, they wanted to rule out regular old baby issues first. So his ears were fine, then they checked his throat and it was full of blisters. They said he has hand/foot/mouth disease, I just started laughing because finally something that regular babies get. Of course I don't want him to have anything, but of our options this is a better alternative. Anyway, Bridger is returning to his usual self as each moment passes. Yesterday he was throwing his toys out of the crib and laughing as I picked them up and washed them over and over. Right now he is taking a much needed, unsedated morning nap. We are checking in with Stanford to see if they have received our paperwork and I am looking into other facilities in case Stanford declines. Since we are still unable to determine what caused Bridger to crash last week, I believe more and more that as always Bridger is giving us a sign of what he wants. He is telling us to get going on the transplant end because he can hold out, but not for much longer. We have always tried to make our decisions in the best interest of Bridger, but he usually makes the decisions for us. This will be a long hard road, but if our son can do it, so can we!